Zane's fevers stayed down today and they turned his vent settings down so he's doing almost all the breathing on his own. We met with all his doctors and therapists this morning, and were given nothing but good reports. They're looking at getting him out of ICU & into a regular room on the floor within a week and a half or two weeks. His white count is coming down and there are still no signs of infection.
Mom and I were downstairs at Au Bon Pain eating some late lunch when his nurse called me to come upstairs. Zane had woken up some more & they thought I should be in there. He was much more 'with it' & responsive. He was very calm and would mouth answers to all our questions appropriately. He didn't remember where he was, but we told him & explained that he had been hurt, etc. He seemed to understand, but couldn't comprehend anything detailed that we told him. He was still coughing up a lot of "stuff", so mom and I got pretty good at grabbing the wand to suction out his mouth. He told us he wanted water & that his mouth was dry so we got him some wet swabs (he can't drink with the trach is in). Thanks to a tip from another burn survivor, I asked Zane if he wanted a cold cloth for his head. He nodded yes & loved it- always wanting me to keep it cold for him. We're slowly getting better at lip reading; He was able to tell us if he was in pain and ask us some questions (those that we could figure out). He loved having his feet rubbed as well & could squeeze my hand when I told him to.
He dozed off a bit while I was sitting at the foot of his bed. Then, all of a sudden, his eyes shot open & he looked very confused. He started mouthing things very emphatically, but I couldn't figure out what he was saying. He got increasingly agitated & angry, making very demonstrative faces & "yelling" (although of course, he can't talk). The nurse quickly gave him some more meds to calm him down. We were told that coming off the drugs wouldn't be easy, so we're trying to remind ourselves that this is normal. It's great to see him awake more, but it's also hard to see him struggle.
They'll continue to try backing off the meds, and do their best to keep him comfortable. Over all, he is doing fantastic, and we just need to help him get through this time. We're trusting God that He is in control and will flush Zane's body from all the medicines when he's ready. While it's not fun to watch, we know that it is just a necessary step in the process & that God will guard his mind. It won't be long now before the withdrawals and delirium subside, and we can really talk to him. Thank God for progress!