Today was another big day for Zane. He had his nurse call me at 8am and I heard his "voice" on the other end of the line (his mechanic-like voice from the passy-muir valve). He was wondering why I wasn't there yet. :) Typically, his nurse does his burn care in the mornings, which takes a few hours, and we can't get in until around noon. This morning though, they were waiting a little longer and Zane didn't feel like waiting for me. When I walked into his room he was sitting up in the chair again and had his valve on so he could talk. Apparently, he'd asked them to call me at 5am, but they made him wait a little while and he wasn't too thrilled. Mostly because of the meds, we saw a little feistiness today.. so much so that it was comical.
He sat in the chair for 4 hours this morning & did fantastic. While he was up, they removed his NG tube (one of the feeding tubes in his nose) and gave him his first sips of water from a cup. It went down perfectly, which was a great sign. The other feeding tube remains as a way to continue giving him the needed calories and oral medicine. Zane was only on the ventilator for 3-4 hours today- the rest of the time he was trach-collared & breathing on his own. They'll probably hook it up again tonight while he sleeps, but it's fantastic that he went so long today without it!
This afternoon Zane was wanting to exercise so they decided to try and get him sitting up in bed and dangling his legs over the side on his own. His physical and occupational therapists came in to assist, but didn't end up doing as much as they thought they'd have to. As they told him he could try to scoot to the edge of the bed and sit up, he did much of it on his own! For someone who has been laying in bed for almost 4 1/2 weeks, this is awesome! His physical therapist was amazed and asked me if he was extremely athletic or something. After taking some time at the edge of the bed, they helped him to stand and turn himself to sit down in the chair. He's still needing a lot of assistance to stand, but we didn't even think he'd be sitting up on his own for a while. This is FANTASTIC. Imagine the feeling after running a marathon.. that's about the equivalent of what Zane goes through just to do things like this right now. So, needless to say, he was pretty tired out.
He sat up in the chair for over an hour again & his lungs remained strong. Before too long, he was very sleepy and asked to go back to bed. His nurse asked him if he wanted to use the ceiling lift or if he wanted to try to stand again. He was exhausted, so he chose the lift. Just as they got the lift positioned over him, he said, "Wait, I want to try it". He then looked at the assistant there with the nurse and said, "I'm gonna need your help". Together, the nurse and the assistant helped him stand, turn, and sit back down in bed. Letting the lift do all the work just wasn't in Zane's nature. He's an extremely hard worker, and fiercely determined.. and if mustering all his strength up and doing it himself meant progress, he'd do it! I was so proud of him.
I got to tell Zane about all the people supporting us through this and all the lives his story had touched and his response was, "Praise God". He asked Dad tonight about the details of the accident and dad explained it all to him. He understood everything and accepted it all with no anger, only thankfulness that God had spared his life and protected his face. Since about 4 years ago, Zane has had a goal of bringing 100,000 people to Christ. Dad told him tonight that he was well on his way. Zane said, "Well, it's not how I had planned, but.." & shrugged his shoulders. God really does take horrible things and make something wonderful out of them. All we can do is take what we've been given and let Him help us make the most of it. If Zane's accident ends up being a way that he'll be able to reach his goal, I know he'll be happy. We are truly looking forward to the ways that He'll continue to use this situation.