Wednesday, November 17, 2010

Perspective

I have to apologize for taking a couple day hiatus from blogging. We've been very busy taking care of Zane. In a typical day, we try to sleep in a little bit (still tired from the late night before), then we use our mornings to run a quick errand or take care of paying bills, etc. We get to the hospital around 11, once Zane's burn care/dressing changes are all done. The days are all a blur- we pretty much just help Zane eat, go for walks, entertain him with stories [which is why it would come in handy to have my sisters here :)], give him massages, or invent random things to keep him busy. We're usually there until 10:30 or 11pm at least, until he falls asleep. It's been difficult for him to sleep so he likes to have me stay with him until he dozes off.

In the past few days, a lot of big things have happened. Zane's up to taking 9 or 10 laps around the floor per day, usually in groups of 3 or 4 at a time. He's barely using the walker for support now, and we plan to take it away at some point today or tomorrow. His strength in his legs is getting MUCH better, and his arms are progressing as well. It will take a while for him to be able to do normal things with his arms and hands again, but he's certainly made great strides towards getting there. Again, the therapists are amazed at his progress.

Zane's slowly getting more and more 'tubes' out. Yesterday morning his trach was removed altogether. The hole in his neck will heal in on its own, but it takes a few days. In the meantime, we have to hold pressure on it when he goes to talk or cough, otherwise the air comes right out his throat rather than his mouth or nose. This should help so he doesn't cough as much, which should also allow him to get better sleep.

Zane's central IV line in his neck was removed last night. They now just have a small access line in his left arm. He's definitely happier without all that stuff on his neck! We heard that his catheter will probably come out today, as he's more able to get up and get to a bathroom.

Each day is definitely showing progress. It's never quite as fast as Zane would like though- he's been ready to go home since he woke up. Please pray that God will both help him to progress speedily and be patient with his body. We've entered the most progressive phase of his recovery, but also the toughest on Zane.. and us. Zane was pretty quiet yesterday, and I could tell he had a lot on his mind. He's still keeping his spirits up, and trusting God to see him through, but it is hard on him at times when he realizes the extent of his rehab. Of course, it's hard for us to see him having a hard time- we work extra hard all day to keep things upbeat and positive & it's pretty draining. But, our God is STILL faithful. He is STILL renewing us, and giving us all that we need to go on.

I had a talk with Zane yesterday afternoon when we were by ourselves about perspective. I told him that what got me through the first four weeks was allowing God to shape my perspective. Each day may be tough- we may not enjoy each moment, but each moment and each day is one more that we weren't sure we would have. God gave us many more days and moments, and that in itself is enough reason to praise Him. So we'll take each moment as it comes, and remember that it is a priceless, precious gift that we do not deserve. Thank God that He can shape our thoughts.

{walking laps in the hallway}

12 comments:

Anonymous said...

He is looking so good Courtney! You are both a vivid warrior of the power of Christ. Tell Zane he really is getting his wish in bringing people to God. There is no other explanation to this miracle of recovery. My love to you both, and your families. <3 Sarah G.

Katarina said...

Hello Courtney and Zane - it's the first time I'm reading your blog, and I read it from the start. I imagine how hard these days must be - my daughter's working at the Pediatric Burn Unit at the University's Children Hospital in Zurich (Switzerland), so I know a bit about burns, surgery and all of these things. Both of you are doing great, I'm very impressed!
Being a breast cancer survivor, I also know how difficult it can be to keep going on. I wish you all the best and pray for Zane's complete recovery!
Regards from Switzerland,
Katarina

P.S.: Sorry for my rather poor English... I hope you understand!

Linda (Shelley) Davis said...

Thanks sooo much Courtney for all your updates .... I check in everyday to see how Zane & you are doing. God is AMAZING & I know he will continue to be with both of you & give you the strength & patience for the rest of this season. Please tell Zane we said "HI" & are praying for all of you everyday. Linda (Shelley) Davis

Lorraine(ME) said...

Thank you, Courtney for the updates despite your busy day. It is well appreciated, but don't ever apologize. You have quite a few priorities in your life at the moment. Zane's progress is so amazing. I was reading Isaiah this morning and this reminded me of Zane:(Is:40:31) "Yet those who wait for the Lord will gain new strength; They will mount up with wings like eagles, They will run and not get tired, They will walk and not become weary." Zane is a determined and focused guy! I know it has to be difficult for Zane as well as for you being there. Maybe there is a special reason for Zane to be there, although his heart's desire is to be home with you. There may be someone that the Lord wants him to reach for Himself, and maybe the work has already begun. There is so much we don't understand but the Lord already knows the "whys". Each day is such a blessing and a special gift, and many will realize that in just reading your blog. God has already used both of you mightily and will definitely continue. I am so happy to read how well Zane is healing and all he is accomplishing through his determination. Zane, you look awesome! We continue to pray for you, Courtney and your family, along with wisdom for the doctors in your rehab. With your determination and the Lord in your life, you have apparently accomplished more than others who have had to deal with situations such as yours. Heal and gain in strength, but don't rush it. Do it in the Lord's time. Don't get discouraged, God has great plans for you! Take each day as it comes letting the Lord lead. You look so amazing, and I am blessed to have been able to meet you both through this blog. God bless! Lorraine(ME)

Dorothy said...

Yea, for all the progress! Yea, for getting the trach and tubes out! He is going to be okay! Praise God for His miracle of healing!

Marydon said...

G'day Courtney ~ How wonderful the news. Please give Zane a BIG HUG for all of us & know that our prayers continue to lift for all of you.

Trust & He will answer ..

Have a beautiful & blessed Thanksgiving holiday.
TTFN ~ Hugs, Marydon

Carol said...

Courtney,
Thanks for the update. We know you are so so busy, so never be concerned about missing days for updates!
Zane is looking great! He is making wonderful progress, but I will be praying for encouragement, patience, progress, strength and healing. It must be hard for Zane to realize how much rehab is ahead, but with God's help, and your help, he'll have help with the perspective.
Praying for the both of you and your family.

Karen said...

You are so right. Each day, each moment we have is a gift from God.
I am so happy to see the miraculous progress.

Andrea said...

They say love move mountains, so is prayer! That is a quick progress. Be patient and everything will fall into place, all of you will come out of it rejuvenated, more wise and more full of love. We are praying for Zane and you.

Anonymous said...

Zane & Courtney, Again I cant believe the progress you are making it simply amazes me how far you have come so very fast. It is great you are talking and walking. You both look great keep up the good work and you both will be home soon. Gail & Zeke

Anonymous said...

Hi Courtney & Zane:

We are so excited about Zane walking and talking. God is healing Zane so rapidly, but yet I know you both need such patience in the time ahead. You both look great. I know Linda & Alan and both families are so happy about his progress. I print off all your updates. You should write an inspirational book from the updates when Zane is healed and home again. Love the pictures!

God Bless you both
Love

Great Aunt Phyllis & Uncle Paul

Mildred said...

I am so very thankful for answered prayers. Indeed, it will be a wonderful Thanksgiving. Our prayers continue for you both as you heal and strengthen.